Create Neurofibromatosis Awareness!

Did you know that neurofibromatosis affects one in every 2,500 births, yet most people are unaware of it? We like to call it "the most common disorder you have never heard of."

We can change that! We're asking you to help us spread the word and raise awareness for neurofibromatosis by joining our #ConnectingNF campaign! Our goal is to spread the word “neurofibromatosis” via word of mouth and across social media so that it is known in every household.

Here are ways you can help!

1.  Our goal is to connect with even more NF families and individuals around the world. This reminds us that we are all on this NF journey together.  Join us by spreading NF awareness by using the hashtag #ConnectingNF on social media, we want to hear YOUR NF story and what spreading NF awareness means to you!

2.  Help the NF Network create awareness by sharing the posts from the NF Network Facebook page, Instagram, or (twitter) X pages or Download the images below and print or share them to your social media account. Use the hashtags #ConnectingNF and #NFNetwork

NF1 PDF	NF2 PDF	Schwannomatosis PDF

3.  Share one of our educational videos Go to our YouTube Channel and explore our library. See a video you like? Click on the share button to the right of the title, copy the URL and paste it into a post or Email.  NF Network YouTube Channel

4.  Get involved or help others get involved. If you want to create a real impact in raising awareness and fostering advancements for NF, there are numerous ways you can contribute. Some of these methods don't even involve monetary donations. From organizing your unique fundraising efforts to making small changes in your online shopping habits, to becoming part of our advocacy movement, your involvement can truly make a difference. Get Involved

5.  The easiest way to help is to donate.  As we continue to provide essential programs and resources to the NF community, the NF Network needs your help more than ever. Your contribution can make a difference now by providing crucial information to our NF community.  Give a gift today