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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

Annual Appeal

  

TOGETHER, WE CHANGE LIVES

Every day, people of all ages living with neurofibromatosis (NF) turn to the NF Network for help, guidance, and hope. Whether someone is newly diagnosed, navigating complex medical care, or supporting a loved one with NF — we are there. We connect individuals and families to vital information, resources, and a caring community so no one faces NF alone. Your generosity makes that possible.

NF RESEARCH IS AT RISK

Federal funding for NF research was eliminated this year — putting progress and clinical trials in danger. Through our Project Dream program, we’re stepping up to fund early-stage, high-impact NF research — but we can’t do it without you.

 

MEET AUSTIN!

After years of surgeries and setbacks, Austin’s family finally found hope in a new clinical trial at WashU. But the logistics were overwhelming and costly.

That’s when the NF Network’s NF Heartline stepped in — connecting them with B the Difference, which provided a vital cooling system for his medication so he could start treatment safely.

“The NF Network’s help lifted a huge weight off our shoulders and reminded us we’re not alone.”

— David Woods, Austin’s father

Your gift creates moments like this — moments of hope and healing.

 

 

YOUR GIFT IN ACTION

SUPPORT 

The NF Heartline connects families to vital resources when they need them most.

RESEARCH 

Project Dream powers groundbreaking discoveries that keep hope alive for families across the nation.

 

ADVOCACY 

Since 1996 the NF Network advocates have worked with Congress to secure funding for NF research through the NF Research Program and the National Institutes of Health, leading to major scientific breakthroughs.

YOUR GIFT WILL ENSURE NO ONE FACES NF ALONE
Every contribution matters. Every dollar fuels hope.

Ways to Give:

Donate by clicking HERE

Mail your check to:

NF Network
P.O. Box 1530
Wheaton, IL 60187

 

We thank you from the bottom of our hearts for your compassion and support of the Neurofibromatosis Network.

 

The Neurofibromatosis Network

Leading NF Advocacy, Building NF Community