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Alabama - University of Alabama at Birmingham (Genetics) - Clinic Director: Rebecca Brown, MD, PhD - University of Alabama at Birmingham
Wisconsin-University of Wisconsin/American Family Children's Hospital - Clinic Director: Nicholas Pytel, DO - American Family Children’s Hospital (UW-Health)
Wisconsin- Froedtert and Medical College of WI Cancer Center - Clinic Director: Jennifer Connelly, MD - Froedtert and Medical College of WI Cancer Center
Wisconsin-Children’s Wisconsin - Clinic Director: Donald Basel, MD, MBBCh, BSc Clinic Co-Director: Leah Lalor, MD - Children’s Wisconsin
Wisconsin-Ascension Columbia St Mary's Hospital Milwaukee - Clinic Director: Hendrikus Krouwer, MD - Ascension Columbia St. Mary's Milwaukee
Washington - University of Washington Medical Center - Montlake - Clinic Director: Lynne P. Taylor, M.D.,(NOTE: treat patients 21 years of age and over only) - University of Washington
Washington - Swedish Medical Center - Clinic Director: Alipi Bonm, MD, PhD - Swedish Medical Center
Washington - Seattle Children's Hospital - Clinic Director: Aimee Sato, MD Clinic Co-Director: Lauren Levesque, ARNP - Seattle Children's Hospital
Virginia-Children’s Hospital of Richmond at VCU - Clinic Director: Christopher Park, MD - Virginia Commonwealth University
Vermont- Sorry, no physicians were found in your area. - -
Utah - University of Utah - Clinic Director: David H. Viskochil, MD, PhD Clinic Co-Director: Vanina Taliercio, MD - University of Utah
California- University of California San Diego (UCSD) Health - - University of California San Diego (UCSD) Health
Texas - Vida Bela Plastic Surgery - Chelsea Snider, MD, Director of Vida Bela Plastic Surgery | Plastic, Reconstructive, & Craniofacial Surgery | Email: info@vidabelaplasticsurgery.com - Vida Bela Plastic Surgery
Texas - UT Southwestern/Children’s Health Dallas - Clinic Director: Laura Klesse, MD, PhD Clinic Co-Director: Justin Jordan, M.D. - University of Texas Southwestern Medical Center (UT Southwestern)
Texas - The University of Texas MD Anderson Cancer Center Children’s Cancer Hospital - Clinic Director: John Slopis, MD, MPH Clinic Co-Director: Gregory Friedman, MD - University of Texas M.D. Anderson Cancer Center
Texas - Texas Children’s Hospital/Baylor College of Medicine - Clinic Director: Surya Rednam, MD - Texas Children’s Hospital
Texas- Dell Children’s Medical Center - Clinic Director: Chelsey Ortman, MD Clinic Co-Director: Virginia Harrod, MD, PhD - Dell Children’s Medical Center
Texas - Cook Children's Health Care System - Jeffery C. Murray, MD and Rachelle Herring, MD - Cook Children's Health Care System
Texas - Baylor College of Medicine-Plastic Surgery - Sebastian Winocour, MD, MSc, FACS, Baylor College of Medicine, Division of Plastic Surgery - Baylor College of Medicine
Tennessee - Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center - Clinic Director: Alex Mohler Clinic Co-Director: Paul Moots, MD - Vanderbilt University Medical Center (VUMC)
Tennessee - Le Bonheur Children's Hospital - Clinic Director: Eniko K. Pivnick, MD (Le Bonheur Children's Hospital) Clinic Co-Director: Melissa Perrino, MD (St. Jude Children's Research Hospital (SJCRH)) - Le Bonheur Children’s Hospital and St. Jude Children’s Research Hospital (SJCRH)
South Dakota - Sanford Health - Eric Trumble, MD - Sanford Health
South Carolina- PrismaHealth Upstate - Clinic Director: Nichole Bryant, MD Clinic Co.Director: Sunjay Nunley, MD - PrismaHealth Upstate
Pennsylvania- Penn State Hershey Medical Center - Clinic Director: Nidhi Shah, DO - Hershey Medical Center Pennsylvania State University
Pennsylvania - Geisinger Medical Center - Neurosurgery - Cameron J. Brimley, MD (Pediatric) - Geisinger Medical Center - Neurosurgery
Pennsylvania - Children's Hospital of Pittsburgh of UPMC - Clinic Co-Director: Kathy Gardner, MD Clinic Co-Director: Jenna Gaesser, MD - Children's Hospital of Pittsburgh of UPMC
Pennsylvania - Children's Hospital of Philadelphia - Clinic Director: Michael Fisher, MD - Children's Hospital of Philadelphia
Oregon - Randall Children's Hospital at Legacy Emanuel Medical Center - George Anadiotis, D.O., Clinical Geneticist; Dana Simpson, M.D., Clinical Geneticist; Kari Magnussen, M.S., Genetic Counselor ; Marta Vaughn, R.D., Dietitian - Randall Children’s Hospital at Legacy Emanuel
Oregon-Oregon Health & Science University - Brain Institute - Kim J. Burchiel, M.D., F.A.C.S. - Oregon Health & Science University
Oregon-Oregon Health & Science University - Kory Keller, M.S., C.G.C. - Oregon Health & Science University
Ohio - UH Rainbow Babies and Children's Hospital - Clinic Director: Duncan Stearns, MD; Clinic Co-Director: Breanne Roche, DNP, APRN, CPNP-PC, CPHON - UH Rainbow Babies and Children's Hospital
Ohio - UH Cleveland Medical Center - President and Scientific Director: Dr. Theodore N. "Ted" Teknos - UH Cleveland Medical Center
Ohio - The Ohio State University Wexner Medical Center - Clinic Director: Oliver Adunka, MD - The Ohio State University Wexner Medical Center
Ohio - Nationwide Children's Hospital - Program Directors: Maryam Fouladi, MD and Jeffrey R. Leonard, MD - Nationwide Children's Hospital
Ohio - Cleveland Clinic - Clinic Director: Gary Hsich, MD Clinic Co-Director: Mina Lobbous, MD, MSPH - Cleveland Clinic Foundation
Ohio - Cincinnati Children's Hospital Medical Center - Clinic Director: Peter de Blank, MD, MSCE Clinic Co-Director: Brittany Simpson, MD - Neurofibromatosis Program
Ohio - Akron Children’s Hospital - Clinic Director: Erin Wright, MD Clinic Co-Director: Matthew Ginsberg, MD - Akron Children’s Hospital
North Carolina - Wake Forest Baptist Health - Clinic Director: Roy Strowd, MD, MS, MEd Clinic Co-Director: Amelia Kirby, MD - Wake Forest University Health Sciences
North Carolina - University of North Carolina Hospitals - Clinic Director: Eric Creed, MD Clinic Co-Director: Soma Sengupta, MD, PhD, MBA, FRCP, FAAN, FANA - University of North Carolina Hospitals
North Carolina - Duke University Medical Center - Clinic Director: David Van Mater, MD, PhD - Duke University School of Medicine
New York - Weinberg Plastic Surgery - Hubert Weinberg, MD - Weinberg Plastic Surgery
New York- University of Rochester - Clinic Director: Alexander Paciorkowski, MD - University of Rochester
New York - Roswell Park Comprehensive Cancer Center - Clinic Director: Lindsay Lipinski, M.D., FAANS - Roswell Park Comprehensive Cancer Center
New York - NYU Langone Health - Clinic Director: Kaleb Yohay, MD; Clinic Co-Director: Devorah Segal, MD, PhD - NYU Langone Heath
New York - New York University Division of Otology and Neurotology - Chair of the Department of Otolaryngology—Head and Neck Surgery: J. Thomas Roland, Jr. FACS - New York University Division of Otology and Neurotology
New York - Memorial Sloan Kettering NF Program - Clinic Directors: Matthias A. Karajannis, MD, MS (Pediatric Neuro-oncology Services), Anna Piotrowski, MD (Adult Neuro-oncology Services) - Memorial Sloan Kettering NF Program
New York - Gosliano Children's Hospital Of Buffalo - Clinic Director: Matthew Barth, MD (Neuro-oncology) Clinic Co-Director: Veetai Li, MD (Neurosurgery) - Gosliano Children's Hospital Of Buffalo
New York - Golisano Children's Hospital at University of Rochester Medical Center - Alex Paciorkowski, MD, Division Chief - Golisano Children's Hospital at University of Rochester Medical Center
New York - Columbia University Irving Medical Center - Clinic Director: Gurcharanjeet ("Bonnie") Kaur, MD - Columbia University Irving Medical Center
New York - Children's Hospital at Montefiore - Clinic Director: Nagma Dalvi, MD Clinic Co-Director: Susan Duberstein, MD - Children’s Hospital at Montefiore Medical Center (CHAM)
New York - Albany Medical Center - Clinic Director: Lauren Weintraub, MD - Albany Medical Center
New Jersey - St. Joseph's Regional Medical Center - Clinic Director: Punita Gupta, MD, FACMG - St. Joseph's Regional Medical Center
New Jersey - Rutgers New Jersey Medical School - Clinic Director: Caroline Hayes-Rosen, MD - Rutgers New Jersey Medical School
Nebraska- Children's Nebraska - Clinic Director: Minnie Abromowitch, MD Clinic Co-Director: Mary Rickard, MD - Children's Nebraska
Missouri - Washington University School of Medicine in St. Louis - Clinic Director: David H. Gutmann, MD, PhD Clinic Co-Director: Angela C. Hirbe, MD, PhD - Washington University in St. Louis
Missouri - SSM Health Cardinal Glennon Children's Hospital - Clinic Director: Ali Jamal, MD - Saint Louis University
Missouri - Children’s Mercy Hospital - Clinic Director: Jaclyn Peraino, DO Clinic Co.Director: Dihong Zhou, MD - Children’s Mercy Hospital
Minnesota - M Health - University of Minnesota Medical Center and Masonic Children's Hospital - Clinic Director: Clay Hoerig, DO - M Health - University of Minnesota Medical Center and Masonic Children's Hospital
Minnesota - Mayo Clinic - Departments of Clinical Genomics - Clinic Director: Dusica Babovic-Vuksanovic, MD, FAAP, FACMG; Clinic Co-Director: Radhika Dhamija, MBBS - Mayo Clinic
Minnesota - Children's Hospitals and Clinics of Minnesota - Clinic Director: Amy Lebedoff, MD - Children’s Hospitals and Clinics of Minnesota
Michigan University of Michigan Neurosurgery - Dr. B. Gregory Thompson, neurosurgeon - University of Michigan Neurosurgery
Michigan - University of Michigan Pediatric Genetics - Division Director: Catherine Keegan, MD, PhD - University of Michigan Pediatric Genetics
Michigan - University of Michigan - Adult Genetics - Clinic Director: Wendy R. Uhlmann, MS, LCGC - University of Michigan - Adult Genetics
Michigan - Henry Ford Health System - Clinic Director: Tobias Walbert, MD, PhD, MPH - Henry Ford Neurofibromatosis Clinic
Michigan - Corewell Health Grand Rapids - Clinic Directors: Dr. Cynthia Hingtgen (Adult Neurology) and Dr. Daniel Fain (Pediatric Neurology) - Corewell Health Grand Rapids (Adult and Pediatrics)
Michigan - Corewell Health East - NF Clinic - The NF Clinic (for children) at McBrien Pediatric Neurology in Royal Oak is clinically coordinated by Dr. Kate Gowans (Hematology-Oncology) and Dr. Heather Little (Neurology) - Corewell Health East (Pediatrics)
Oklahoma - University of Oklahoma Health Sciences Center - Clinic Director: Danielle DeMarzo, MD; Clinic Co-Director: Rene Y. McNall-Knapp, MD - University of Oklahoma Health Sciences Center
Massachusetts - Tufts Medical Center - Physicians: Dallas Reed, MD, Medical Geneticist, Obstetrics (617-636-8100); John Gaitanis, MD, Chief Pediatric Neurology (617-636-8100); Carl B. Heilman, MD, Neurosurgeon in Chief (617-636-5860); Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology (617-636-4500); Nancy Pinnell, Genetic Counselor (617-636-4540) - Tufts Medical Center
Massachusetts - Massachusetts General Hospital - Clinic Director: Scott R. Plotkin, MD, PhD - Massachusetts General Hospital
Massachusetts - Boston Children's Hospital - Clinic Director: David T. Miller, MD, PhD Clinic Co.Director: Nicole Ullrich, MD, PhD - Boston Children's Hospital
Maryland - The Johns Hopkins Hospital - Comprehensive NF Center - Clinic Director: Jaishri Blakeley, MD - The Johns Hopkins Hospital
Maryland - National Cancer Institute - Clinic Director: Brigitte C. Widemann, MD, Chief, Pediatric Oncology Branch - National Cancer Institute
Louisiana - Manning Family Children's - Clinic Co-Directors: Maria C. Velez, MD (neuro-oncologist) and Jerome Volk, MD (neurosurgeon) - Children’s Hospital of New Orleans
Kentucky - University of Louisville - Clinic Director: Guneet Sarai, M.D. Neuro Nurse Naviagator: Keola Calderon - University of Louisville
Kentucky - University of Kentucky - Clinic Director: Donita D. Lightner, MD - University of Kentucky
Iowa - University of Iowa Stead Family Children's Hospital - Clinic Director: Alpa Sidhu, MBBS, PhD - UI Stead Family Children's Hospital
Indiana - Indiana University Health – Riley Children’s - Clinic Director: Steven Rhodes, MD, PhD Clinic Co.Director: Laurence E. Walsh, MD - Indiana University Health – Riley Children’s
Illinois- University of Illinois, Chicago - - University of Illinois, Chicago
Illinois - University of Chicago Medicine - James Tonsgard, MD, Director, University of Chicago Ambulatory Program for Neurofibromatosis - University of Chicago Medicine
Illinois - Northwestern Memorial Hospital - Neuor-Oncology - Clinic Co-Directors: Roger Stupp, MD and James P. Chandler, MD - Northwestern Memorial Hospital
Illinois - McKay McKinnon, MD - Plastic Surgery - McKay McKinnon, MD; Plastic & Reconstructive Surgery, Plexiforms - McKay McKinnon, MD
Illinois - Ann & Robert H. Lurie Children's Hospital of Chicago - Clinic Director: Robert Listernick, MD Clinic Co.Directors: Carlos E Prada, MD - Miriam Bornhorst, MD - Janice Lasky Zeid, MD - Ann & Robert H. Lurie Children's Hospital
Georgia - Wellstar Children's Hospital of Georgia - Clinic Director: John Henson, MD - Wellstar Children's Hospital of Georgia
Georgia - Children's Healthcare of Atlanta - Clinic Director: David Wolf, MD, PhD - Children's Healthcare of Atlanta
Florida - University of Florida, Neuro Medicine Hospital - Clinic Director: Hans H. Shuhaiber M.D. hshuhaiber@ufl.edu - University of Florida, Neuro Medicine Hospital
Florida - University of Florida, Jacksonville, Jacksonville Health Science Center - Pamela L. Trapane, M.D., Chief, Division of Pediatric Genetics. pamela.trapane@jax.ufl.edu - University of Florida, Jacksonville, Jacksonville Health Science Center
Florida - Nicklaus Children's Hospital - Mislen S Bauer, MD, Director, Neurofibromatosis Program - Nicklaus Children's Hospital
Florida - Moffitt Cancer Center - Clinic Director: Sepideh Mokhtari, MD Clinic Co.Director's Name: Nam Tran, MD - Moffitt Cancer Center
Florida - Johns Hopkins All Children's Hospital - Clinic Director: Stacie Stapleton, MD Clinic Co.Director: Melissa Crenshaw, MD, FAAP, FACMG - Johns Hopkins All Children's Hospital
Florida - AdventHealth for Children - Medical Director: Chenue Abongwa, MD - AdventHealth for Children
District of Columbia - Children's National Health System - Roger Packer, MD, Director; Clinic Coordinator: Jennifer Ramos-Blanco (202-476-5181) - District of Columbia - Children's National Health System
Delaware - Nemours/Alfred I. duPont Hospital for Children - Clinic Director: Dr. R. Taylor Sundby - Nemours Children's Hospital
Connecticut - Yale New Haven Hospital - Asher Marks, MD, Director of Pediatric Neuro-Oncology; Clinic Coordinator: Jamie Batson Phone: 1-877-925-3637 (1-877-YALE MDS) Fax: 203-737-7635 - Yale New Haven Hospital
Connecticut - Connecticut Children's Medical Center - Clinic Director: Francis DiMario, MD. - Connecticut Children's Medical Center
Colorado - Children's Hospital Colorado - Clinic Director: Aaina Kochhar Clinic Co-Director: John Binder, MD - Children's Hospital Colorado
California- Valley Children’s Healthcare - Clinic Director: Merveen Appu, MD, MS Clinic Co-Director: Audrey Green-Murphy, DO - Valley Children’s Healthcare
California - University of California, Los Angeles - UCLA - Clinic Director: Phioanh (Leia) Nghiemphu, MD Clinic Scientific Director: Marco Giovannini, MD, PhD - University of California, Los Angeles - UCLA
California - UCSF Benioff Children’s Hospital - Pediatric Clinic Director- Alyssa Reddy, MD, Adult Clinic Director: Dr. Brian Na, MD, PhD*****************************Pediatric website: https://www.ucsfbenioffchildrens.org/clinics/neurofibromatosis-type-1-nf-1-and-schwannomatosis - UCSF - University of California, San Francisco
California - UC Irvine Medical Center - Clinic Director: Dr. Fuki Marie Hisama - UC Irvine Medical Center
California - UC Davis Health - MIND Institute - Clinic Director: Dr. Suma Shankar - UC Davis Health - MIND Institute
California - Stanford Neuroscience Health Center - Clinic Director: John Day, ND, PhD - Stanford Health Center
California - Stanford/Lucile Packard Children's Hospital - Clinic Co-Director: Cynthia Campen, MD Clinic Co-Director: David A. Stevenson, MD - Stanford/Lucile Packard Children's Hospital
California - Panossian Plastic Surgery - Andre Panossian, MD - Panossian Plastic Surgery
California - Miller Children’s and Women’s Hospital - Clinic Director: Natalie Gallant, MD - Miller Children’s and Women’s Hospital
California- Kaiser Permanente, Nothern California - Clinic Director: Anirudh Saronwala, MD Clinic Co-Director: Kenneth Fox, MD - Kaiser Permanente, Northern California
California - House Clinic - William H. Slattery, III, MD and Gregory p. Lekovic, MD, PhD - PIH Health House Clinic
California - City of Hope - Dr. Keng Lam, M.D. and Dr. Mike Chen, M.D. - City of Hope
California - Children's Hospital Orange County - Clinic Director: Neda Zadeh,MD, Pediatric Genetics - Children's Hospital Orange County (CHOC)
California - Children's Hospital Los Angeles - Clinic Director: Tena Rosser, MD Clinic Co-Director: Linda Randolph, MD, FAAP, FACMG - Children's Hospital Los Angeles
California - Cedars-Sinai Medical Center - Pedro A. Sanchez, MD - Cedars-Sinai Medical Center
Arkansas - Arkansas Children's Hospital - Gregory Sharp, MD, Elizabeth Sellars, MD, (Medical Director) Kevin Bielamowicz, MD, Adrianne Parkey, MD; Aurielle Westfall (NF Clinic Nurse Coordinator) - Arkansas Children's Hospital
Arizona - Phoenix Children's Hospital - Clinic Director: Neil R. Friedman, MBChB/ Neurology; Clinic Co-Director: Ross Mangum, MD * * * * * * * * * * Phoenix Children’s Neurofibromatosis Clinic - Living with NF can be challenging, but at Phoenix Children’s Neurofibromatosis Clinic we provide comprehensive patient-centered care and compassionate support. We understand that each patient's journey with NF is unique, which is why we take a holistic approach to care, bringing together a team of specialists to address every aspect of the condition. We partner with our patients to empower them to take an active role in managing their health and well-being and prioritize open communication. We partner with our patients to empower them to take an active role in managing their health and well-being and prioritize open communication. Our multidisciplinary team of world-class specialists includes neurologists, oncologists, ophthalmologists, genetic counselors, dermatologists, and other experts who work collaboratively to provide personalized treatment plans. We are dedicated to advancing the field of NF research, offering cutting-edge treatments, and supporting patients every step of the way. Together, we can build a brighter future for NF patients and their families. - Phoenix Children's Hospital
Arizona - Mayo Clinic Hospital - Phoenix - Clinical Director: Mayoa (Mayo) A. Osundiji, MBBS, PhD Clinical Co-Director: Maciej M Mrugal, MD - Mayo Clinic Hospital - Phoenix
Arizona - Honor Health/Scottsdale Shea Hospital - Vinodh Narayanan, MD - Arizona Pediatric Neurology & Neurogenetics Associates
Alaska - Sorry, no physicians were found in your area. NF Network - televisit - -
Alaska - Alaska Department of Health and Social Services - Division of Public Health - Ms. Wahlira - Alaska Department of Health and Social Services - Division of Public Health
Alabama - University of Alabama at Birmingham - Clinic Director: Rebecca Brown, MD, PhD - University of Alabama at Birmingham
Hawaii - Sorry, no physicians were found in your area. NF Network - televisit - -
Wyoming - Sorry, no physicians were found in your area. NF North Central - televisit - Sorry, no physicians were found in your area. For information, please contact: NF North Central Connect with us by clicking here. http://nfnorthcentral.nfnetwork.org -
Montana - Sorry, no physicians were found in your area. NF North Central - televisit - -
Idaho - Sorry, no physicians were found in your area. NF Network - televisit - -
West Virginia - -
New Mexico - Sorry, no physicians were found in your area. NF Network - -
Nevada - Sorry, no physicians were found in your area. NF Network - -
Mississippi - Sorry, no physicians were found in your area. NF Network - -
Maine - Sorry, no physicians were found in your area. NF Northeast - -
New Hampshire - Sorry, no physicians were found in your area. NF Northeast - -
Rhode Island - Sorry, no physicians were found in your area. NF Northeast - -
Kansas - Sorry, no physicians were found in your area. NF Central Plains - -
North Dakota - Sorry, no physicians were found in your area. NF North Central - -

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