Speaking Out, Speaking With, and Speaking For Our NF Community

Author: NF Network
Published On: 02/28/2022

At the beginning of February, advocates across the country participating in the NF Network Advocacy Program readied their work-from-home spaces and prepared to conduct their annual meetings educating Congress on the importance of continued federal funding for NF research. On February 7th through the 11thover 80 advocates met with 265+ congressional offices and shared our stories, successes, and fiscal year request for 2023. Their mission was to encourage signatures in support of this vital NF research funding.

We are grateful for the passion, dedication, and support shared by each of you! We are inspired by the work of our advocates - year after year - who speak out, speak with, and speak for our NF community. Our work wouldn’t be possible without you.

The NF Network Advocacy Program’s Virtual Hill Visit Days were the first part of our journey. We will continue to need your voices to remind Congress of the importance and impact of these federal research funds for neurofibromatosis. As we prepare for the Dear Colleague letters to begin circulating, we thank you for advocating with us on behalf of all the families and individuals living with NF!


Learn more about the NF Network Advocacy Program here.

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