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Neurofibromatosis Network

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Building NF Community

Chicago's 3rd Annual NF Hope® Concert

Naperville | IL

Chicago's 3rd Annual NF Hope® Concert
Sunday, March 29, 2020 at 2:00 PM
Wentz Concert Hall in Downtown Naperville

Join the NF Network this March for an exciting event bringing together incredible local talent and national headliners for an evening of fun and entertainment to support a wonderful cause! Additionally, we will celebrate those dedicated to helping improve the lives of those living with NF. Ticket on sale begins Monday, December 16thGeneral Admission tickets will be $49, and VIP tickets will be $79. 

Chicago's 3rd Annual NF Hope® Concert will take place at its new home, the spectacular Wentz Concert Hall in the heart of downtown Naperville, less than a block away from the serene Riverwalk and local shopping and restaurants. Celebrate a beautiful spring weekend and join the NF community at our choice hotel for Chicago's 3rd Annual NF Hope® Concert, Hotel Indigo

  

 

2020 CHICAGO HONOREES

In 2014, the founders of the NF Hope Concerts instituted two annual awards:

  • The Paul Bodner Memorial Award - an award presented to a member of the NF Community who has taken the challenged NF presents and used them to inspire those around them
  • The Advocate of Hope Award - an award presented to an individual or company, whose contributions have made a significant difference in the lives of those living with Neurofibromatosis
     

Dr. David Gutmann, MD, PhD, FAAN, Chicago's 2020 Advocate of Hope Award Recipient

For over 25 years, Dr. Gutmann has cared for children and adults with neurofibromatosis, as well as directed a basic research laboratory focused on using NF as a genetic model system to better understand normal brain and brain tumor development relevant to improving the lives of people with NF and related disorders.

Dr. Gutmann received his MD and PhD degrees at the University of Michigan Medical School.  He worked in the laboratory of Dr. Francis S. Collins to identify the function of the NF1 gene. 

 

Matt Hay, Chicago's 2020 Paul Bodner Memorial Award Recipient

Matt Hay was diagnosed with NF2 as a sophomore in college at Indiana University. Since that initial MRI in 1997, he has undergone several serious surgeries to remove the life-threatening tumors and to receive an auditory brainstem implant (ABI) - a device that uses surgically implanted electrodes attached directly to the part of the brainstem that processes sound.

His personal diagnosis with NF2 led him to his “dream job” with Redux, where he educates the audiology community on the newest technologies for hearing instrument care. “There are days I even forget that I have NF2, which I never would have believed possible.” Outside of his professional career, Matt finds comfort in NF related fundraising events like NF Hope® Concerts, often found (slowly) walking, running, biking and swimming across the Midwest to support NF research.

Matt is a loving husband and father to three beautiful children. His passion is to bring awareness and solutions to the hearing loss and NF community.