The British actor, 39, who lives with neurofibromatosis type 1, wants to hold the door open for others — and he's challenging Hollywood to do better at telling stories about disability.

REiNS is conducting an online research study to learn more about the perspectives of patients and guardians regarding future gene therapy. Learn how to participate.

In this powerful TEDx talk, Matt Hay shares his inspiring journey of resilience and innovation after losing his hearing to NF2 Faced with a life-changing decision between saving his hearing and his life, Matt chose survival but embarked on an extraordinary process to reclaim sound through an Auditory Brainstem Implant (ABI). His "irrational persistence" led him to defy expectations, not only restoring his connection to vital life sounds but also rediscovering the joy of music and communication.

Antwan Winkfield’s earliest memories are shrouded in the stories his family told him. From an early age, his grandmother helped diagnose his case of NF1. Through the years despite the numerous health challenges he's experienced, Antwan persevered through faith and strength, graduating college and maintaining a managerial position. Read his full story.