NF2 Information Packet
NF, Inc. provides two NF2 informational packets. The first includes diagnosis and management information and a list of resources for NF2 patients. The second is unique for the deaf and hard-of-hearing who are facing hospitalization. To request one or both, please contact .(JavaScript must be enabled to view this email address).
If you do not have email access please call NF, Inc. 800.942.6825 with packet requests.
The NF2 Patient Packet contains the following:
- NF, Inc. Brochure
- NF2 Body Sheet
- “Understanding Neurofibromatosis” an introduction for patients and parents (book available by mail only)
- NF2 Compass Advocure Newsletter
- NF2 Glossary of terms
- NF2 Crew brochure
- Advocure brochure
- Helpful Resources
- Insurance Coverage
- Seeking out the best Medical team
- NF2 information sources
- Ways to Help NF
- University of Alabama Genetic Testing for NF2
- Run4NF Flyer
More (please list any of these additional materials when requesting the packet)
- NF Buddies (available by mail only)
- “Neurofibromatosis type 2” by Dr. Ashok Asthagiri
- “Hearing Improvements after Bevacizumab in Patients with NF2”
- DNA Testing for NF2
- March of Dimes NF2
- NF2 in Childhood
- NINDS NF Fact sheet
- Cochlear Implants in NF2
- A Guide for Cart Users
Many of the NF1 packet materials are available in electronic format for you to download, or you may request a packet be mailed to you.
I would like a packet to be mailed.
Electronic information:
NF, Inc. Brochure
Understanding Neurofibromatosis
NF2 Body Sheet
NF2 Glossary of Terms
NF2 Crew brochure
Advocure brochure
Helpful Resources
Insurance Coverage
Seeking out the best Medical team
NF2 information sources
Ways to Help NF
University of Alabama Genetic Testing for NF2
Run4NF Flyer
“Hearing Improvements after Bevacizumab in Patients with NF2”
DNA Testing for NF2
March of Dimes NF2
NF2 in childhood
NINDS NF Fact sheet
Cochlear Implants in NF2
A Guide for Cart Users
NF2 Compass Winter 2011
