Combined Federal Campaign.  Do you, your friends or family work for the federal government, the military or are a postal worker?  Please consider becoming part of the Combined Federal Campaign with workplace giving.  The mission of the CFC is to support different charities through a program that is employee focused. All federal employees have the opportunity to participate. Pledges made by Federal civilian, postal and military donors during the campaign season (September 1st to December 15th) support eligible non-profit organizations like the NF Network.

For more information on the CFC, or to request a CFC Charity List and/or a CFC pledge form, visit the CFC website. Check with your company’s Human Resources Department if you have questions.

Our CFC Code is #10227

 

Employer Matching Gifts. If your employer has a matching gift program your donation could be doubled, tripled, quadrupled, and, potentially, matched up to (5) times your original gift amount. Did you know that many employers match donations given by the employee, their spouse, children up to age 25, their retired workers and even the retired workers spouse? How about the fact that some employers will donate dollars for the hours that you volunteer at qualifying non-profits? And, that many employers will match your donations and volunteer work going back a full year? If you'd like to find out if your employer participates in a matching gift program CLICK HERE and we'll help you get started.

United Way.  If your employer conducts a United Way campaign you can designate your contributions to NF Network by writing the following on your pledge card:  Neurofibromatosis Network, 213 S. Wheaton Ave., Wheaton, IL 60187, 630-510-1115.

Advocacy.  The NF Network works with Advocates from across the country to educate congress about the importance of federal funding for NF Research.  NF, Inc. has actively participated in advocacy for federal dollars for NF research since 1996 and because of these efforts over $200 million dollars has gone into the Army’s NF Research Program. The success of this very targeted NF specific research program has resulted in Scientist being able gather information which has led to the development of many different drugs being tested for clinical trials.  Additional cutting edge data that has been obtained from this program and has been used when applying for research grants at the National Institutes of Health (NIH), increasing our federal funding of NF research dollars.

Great Steps4NF Walks take place in communities nationwide. These inspiring events create strong bonds that build a supportive NF community. The goal of these strong communities is to rally together and become one great voice in finding affective treatments and an eventual cure for NF. The walks are a great way to involve family and friends, meet others who are affected by NF, while raising awareness of this disorder and to create funding for NF research.
Contact Yvonne Glass at yglass@nfnetwork.org or call (630) 510-1115.

Doodle4NF Throughout the year the NF Network appeals to celebrities to sketch a “doodle”.  As part of NF awareness month these Doodle4NF celebrity doodles are available for auction on ebay during the month of May. Auction proceeds further our efforts to support NF patients and their families. You can view current and past years doodles on the Doodle4NF website at www.doodle4nf.org.

 

Run4NF is a national fundraising organization whose mission is to create a team of people who through personal challenges will boost NF public awareness as they fundraise for NF. Run4NF welcomes all willing to make a difference regardless of their athletic abilities. No matter how long it takes to finish a challenge Run4Nfers are all winners for taking their first step across the start line.

 

Meet4NF. Organize your own Meet4NF event to get to know others with NF. Gather to discuss NF and how to help be part of finding the treatment and cure. Call the NF Network office for assistance at 630-510-1115.

Fundraise4NF with FirstGiving from the convenience of your own home and using their software you can, create a personalized fundraising page in minutes, share your personal NF story via social media and email, raise awareness about NF and fundraise in a no-pressure, fun and engaging way. Get started today at FirstGiving.com. For more details contact Yvonne Glass at yglass@nfnetwork.org or call 630-510-1115.

Something else to think about! Any hobby or interest that you share with a group of people could be an NF fundraising event. If you like reading, you could have a Read-A-Book4NF event at the library, if you like parks you could have a  Fly-A-Kite4NF or Hike4NF, Stamp Collect4NF might be held a local stamp store, Gynmnastics4NF at your gymnastics school, Knit4NF could be done anywhere. Recently, a gentleman had an online gaming event and another a paranormal conference with funds benefitting NF. I'd love to help you turn your hobby into an NF fundraiser. Contact Yvonne Glass at yglass@nfnetwork.org or call (630)510-1115 with your ideas.

 

 

It's World #NFAwareness Day & there's just 2+ hours left to bid on the @Doodle4NF auction. Check it out & #EndNF: http://t.co/Cn9hQCT6Ra