Raise Awareness this May for NF!

How can you make a difference during May,
Neurofibromatosis Awareness Month?

Invite your family, friends and co-workers to a party with Brad Paisley, Gillian Anderson, Patrick Sharp, Margaret Keane, actors, entertainers, authors, illustrators, chefs and sports celebrities’ s oodles of doodles!

Have a little friendly competition bidding on your favorite doodles.  Use the Doodle4NF flyer and post it at your workplace, share it on social media, invite family and friends over for a Doodle party!

Doodle4NF eBay auction begins May 7th!  One of a kind autographed Celebrity Doodles will be auctioned for 10 days.  Check out all the 2015 doodles on the Doodle4NF website, and be sure to like Doodle4NF on Facebook, and most importantly have fun and BID often!

Get an NF STRONG t-shirt!  For a $20 donation per shirt, you can have an awareness month t-shirt!  Just make your donation on our website, and in the comments box indicate quantity and size(s).  Available sizes are Youth XL, Adult Small, Medium, Large, X-Large and 2X-Large. (Youth XL is also equivalent to an Adult XS). The shirts will be shipped starting around the middle of the month, and within the US only.

For the month of May, let's make some noise and let people know NF is important to you by changing your Facebook profile picture and banner to support NF!  Feel free to save and share them right from our Facebook page, and share them with everyone you know!

Watch for NF Challenges, Awareness tips and Fun Facts on Facebook and Twitter throughout May to share with everyone you know!


With the advent of the internet, fundraising has become easier and easier. No more door-to-door solication of your neighbors or signup sheets at the office.

The NF Network has teamed up FirstGiving to offer you the convenience of fundraising from your own home. Using FirstGiving's software you can:

  • Create a personalized fundraising page in minutes         
  • Share your personal NF story via social media and email
  • Raise awareness about NF
  • Fundraise in a no-pressure, fun and engaging way 

Learn more and get started now!


Combined Federal Campaign.  Do you, your friends or family work for the federal government, the military or are a postal worker?  Please consider becoming part of the Combined Federal Campaign with workplace giving.  For more information on the CFC, or to request a CFC Charity List and/or a CFC pledge form, visit the CFC website. Check with your company’s Human Resources Department if you have questions.  Our CFC code is #10227.

Advocacy.  The NF Network works with Advocates from across the country to educate congress about the importance of federal funding for NF Research.  The Network has actively participated in advocacy for federal dollars for NF research since 1996 and because of these efforts over $250 million dollars has gone into the Army’s NF Research Program. Learn how to become an advocate!

Great Steps4NF Walks take place in communities nationwide. These inspiring events create strong bonds that build a supportive NF community. The walks are a great way to involve family and friends, meet others who are affected by NF, while raising awareness of this disorder and to create funding for NF research.  Have a walk near you!  Contact Yvonne Glass at yglass@nfnetwork.org or call (630)510-1115.

Something else to think about! Any hobby or interest that you share with a group of people could be an NF fundraising event. If you like reading, you could have a Read-A-Book4NF event at the library, if you like parks you could have a Fly-A-Kite4NF or Hike4NF, Stamp Collect4NF might be held a local stamp store, Gynmnastics4NF at your gymnastics school, Knit4NF could be done anywhere. Recently, a gentleman had an online gaming event and another a paranormal conference with funds benefitting NF. I'd love to help you turn your hobby into an NF fundraiser. Contact Yvonne Glass at yglass@nfnetwork.org or call (630)510-1115 with your ideas.





Sign up for our email list
to stay iNFormed

Join the #ClevelandClinic for their symposium, #Neurofibromatosis 2016: Living with Neurofibromatosis 1 and 2. https://t.co/0uSajgAsNs