NF RESEARCH
Since 1996, NF research has been funded by Congress through Congressionally Directed Medical Research Programs (CDMRP) from the Department of Defense and through the National Institutes of Health (NIH).
Research that has been funded by Congress has resulted in the determination that the NF gene controls other pathways which are directly related to most forms of human cancer, cognitive disorders and heart disease affecting over 175 million Americans.
Clinical trials have begun to find medicines that will block these pathways.
Continued Congressional funding through the CDMRP and NIH is vital in funding pre-clinical and clinical trials and finding a treatment and cure for NF and its related disorders.
What we are seeking in Fiscal Year 2013
Defense Appropriations Request: Support $16 million in funding for the Army’s NF Research Program (NFRP) in the Fiscal Year 2013 Department of Defense Appropriations bill. The NFRP is one of the Department of Defense’s Congressionally Directed Medical Research Programs (CDMRP).
Labor HHS Appropriations Request: We are requesting that report language on NF research at the National Institutes of Health be included in the FY2013 Labor, Health and Human Services, Education Appropriations bill.
HOW IS NF FUNDED?
How is NF research funded?
Through several institutes at the National Instutites of Health (NIH and through the Department of Defense (DOD).
Legislative Agenda Fiscal Year 2013
Defense Appropriations Bill Request:
Support funding for the Army’s NF Research Program. The NF Research Program is one of the Department of Defense’s Congressionally Directed Medical Research Programs (CDMRP).
Sign onto a Dear Colleague letter to the Labor HHS and Defense subcommittees supporting funding request.
Labor HHS Appropriations Bill Request:
Increased funding from NIH (report language).
Is NF Funding in the Defense Bill considered an earmark?
The Army’s Peer-Reviewed Neurofibromatosis (NF) Research Program, like the Peer-Reviewed Breast Cancer Research Program, is a Congressionally Directed Medical Research Program (CDMRP).
Funds are awarded through a competitive process and are not targeted for a specific site.
As such, The Peer-Reviewed Neurofibromatosis (NF) Research Program is a national program and NOTan earmark. In the past, the CDMRP programs, including the NF Research Program, have not been treated as earmarks by the Appropriations Committee during the appropriations process.