Become an Advocate

We need your voice

Join the NF Network advocates.  As the national leaders  in the promotion of government-funded NF research we need Your voice to bring the NF message to Congress each year to secure federal funds for NF research.   

As an advocate, you will

  • Generate action from our elected officials by making calls and writing letters
  • Stay on top of policy and legislative issues through alerts and updates
  • Help elevate the need for NF Research funding

Join us to increase NF research dollars 

Create your own personal story!

See below for samples of letters we have received for reference on how to write your own personal story.

Sample letter 1
Sample letter 2
Sample letter 3
Sample letter 4

See how to Structure your meeting:

Watch the NF Network webinar "Advocating for NF in Washington DC"

 

Sign up for our email list
to stay iNFormed

Our fearless leader, Executive Director, Kim Bischoff, has been one of our lead #NFAvocates for 20 years! Thank you… https://t.co/1CjngRFkYm