Advocacy Updates

Mar
26

You can make NF Research Happen by giving 2 minutes of your time!

Things do not happen.
Things are made to happen.

- John F. Kennedy

The NF Network has made it easy for You to Make NF Research Happen! 

Just take one minute of your time to follow the LINK which will allow you to email your Congressman and let them know that NF Research funding is important to you. 

Then take another minute to send this message to everyone you know and ask them to follow the link to email their congressmen that federal funding of NF Research must continue.

As a result of NF Advocates past efforts over $230 Million federal dollars have been spent on NF Research.  The NF Network has created a quarterly newsletter to inform you of how your advocacy efforts have resulted in actual NF research.  You can read the latest issue here.

Please consider making a contribution to the NF Network so we can continue with the imperative advocacy efforts which are necessary to find the ultimate cure for Neurofibromatosis.  

The NF Network home page has a webinar we just recently hosted on advocacy which will help if you would like more information on making calls or meeting with your Congressmen in their districts.

Follow in the footsteps of John F. Kennedy and make NF Research Happen!

Sincerely,

Kim Bischoff
Executive Director
NF Network

ALL NEW WEBINAR! "Understanding Seizures in #NF1" by James Tonsgard, MD. Register NOW! http://t.co/kxPIae9KHF