Advocacy Updates


Letter to House of Representatives

The House Defense Subcommittee announced that they will mark up their bill Tuesday, May 8th. Encourage your Representatives to include $16 million for the Neurofibromatosis Research Program in their FY12 bill.


Letter to House of Representatives: DOWNLOAD 

Wishing Melissa Shea Malerba the best as she once again runs the #BostonMarathon for #NFincNE. You make us proud! #BostonStrong #Boston